Kelley's Journey: Facing A Rare Disease With Courage

  • Publish Date: 2003-04-01
  • Binding: Paperback
  • Author: Denise Crompton

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Kelley has lived successfully for 39 years with a rare disease called Mucolipidosis III. It has affected all of her bones and joints, her trachea and bronchial tubes. Despite many surgical procedures, she has been a positive power of example to many.At the age of 14, her year-end school report read in part, 'Kelley manages extremely well despite physical problems. For such a young person, she has an incredible emotional strength. She and her family have a positive attitude toward her disability. When Kelley lacks motivation in school, it may well be that she is not feeling well, but is not making a fuss about it. She tunes in easily to other people, and is sensitive to their feelings and problems. She tries to help others. Kelley is a concrete learner and has sound common sense.'Although she has earned a Bachelor's degree in Psychology, her medical condition is so unpredictable that she is unable to work at a full time job. She volunteers instead. Despite an uncertain future, Kelley is an inspiration, consistently displaying a remarkable attitude while maintaining a strong faith in God; causing many people who know her to say, 'Kelley is my Hero!'

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